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Survivors Day

By on May 30, 2016

June 5 is HIV Long-Term Survivors Day. Every year people join together to celebrate and honor the Long-Term Survivors of the HIV/AIDS epidemic. Please join with us in raising awareness about the needs, issues and journeys of HIV Long-Term Survivors (HLTS) as we mark two significant milestones – it has been 35 years since HIV was identified on June 5, 1981. It is 20 years since Highly Active Antiretroviral Therapy (HAART) was introduced.

The theme for 2016 is “Moving Forward Together”. It celebrates those who have defied the odds by living with HIV for decades. Our focus is on ensuring that HIV Long-Term Survivors and Older Adults Living with HIV are not invisible and forgotten in the current HIV dialogue. We want to change the narrative from surviving to thriving. Achieving that goal requires older adults with HIV to be equipped for healthy aging. Long-term survival, once an almost unimaginable concept is now the norm.

With courage and compassion, we survived the darkest days of the plague. Without access to effective treatments, we were forced to rely on each other and ourselves. As individuals and a community, we exhibited strength we didn’t know we had. Now we’re face the conundrums of aging. Celebrating our lives is what the day is all about.

Today over half of all people living with HIV in the US are over 50. By 2020 that will increase to 70 percent. The mew face of HIV is aging. However, HIV and Aging is not a monolith. A case can be made that Pre-HAART survivors and Post-HAART survivors are separate cohorts with overlapping but different medical and psychosocial needs. Longest term survivors, those who acquired HIV before 1996, face different medical issues and decades of planning to is having an impact on our lives now.


We now find ourselves confronting the realities of aging— something that was unimaginable before 1996. We’re the generation who were told to plan to die young. By the end of that year, in the U.S. we witnessed the deaths of 362,004 of our loved ones and community. 6.4 million people had died form AIDS worldwide.